Perspectives of Non-Speaking ICU Patients and their Families on Goals-of-Care and End-of-Life Discussions
May 22, 2026
Abstract
Objectives: The objective of this study was to explore how patients and their caregivers perceived their communication during goals-of-care/end-of-life discussions and decision-making in the intensive care unit (ICU). The patient participants were temporarily non-speaking due to their medical treatment and used augmentative and alternative communication (AAC) during their stay in the ICU. Results from patient participants were garnered when they reported their experience retrospectively. The long-term goal was to support strategies and assist in the development of AAC tools for patient participation during goals-of-care and end-of-life conversations.
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